As November arrives and the Thanksgiving/Christmas season of goodwill begins, I will inevitably bump into a grinch who grouses about his or her lack of blessings. The economy is awful, their health is failing, the family is falling apart. Their greatest joy seems to be passing on bad news. I have the feeling I ruin the day further by promising to pray.
In my own seasons of calamity I have learned to be content, and I hope I will honestly be able to say at the end of my earthly life when all seasons come to a close, “I know both how to be abased and how to abound.”
One of those difficult seasons arrived early in life when my sister was born. A victim of the German Measles epidemic in the mid-1960’s, Tricia entered this world with several congenital defects. For her first two years, she was in and out of hospitals as doctors became detectives in discovering what was wrong and what, if anything, medicine could do to help. One of her challenges was cerebral palsy (CP).
So when I was twelve and Tricia was two, my mom handed me a book. Karen. A true story, Marie Killilea wrote about the hardships of raising a daughter (Karen) with CP. Except the hardships were laced with such joyful episodes of the Killilea family loving and supporting each other, how could I feel sorry for them for long? I identified with them. My family was like theirs.
Karen’s parents treated her like all of their other children. While she had a delightful personality, Karen was no angel, and she paid the consequences just as her brother and sisters did. That’s how my parents treated Tricia. Karen’s siblings helped teach her to walk and eat and play like other children. That’s what my brothers and I did with Tricia! They even had a dog who assigned himself the duty of Karen’s guardian. Well, the similarities ended there. Our dog wasn’t that talented.
The book was not a new publication when I first read it. Karen was born in 1940. Most doctors of the era advised Marie and her husband to place Karen in an institution and forget they ever had a daughter with that name. In response, Marie pioneered the founding of the Cerebral Palsy Association of Westchester County which later joined with other local organizations to form Cerebral Palsy Associations of New York State (CP of NYS) . With the help of a few willing doctors, they tried highly experimental exercises to help Karen coordinate her muscles. Their success brought new hope to thousands of other families who were struggling with the sorrows of CP.
Marie Killilea also wrote a sequel, With Love From Karen, and a young children’s version of Karen titled Wren.
While Marie passed away several years ago, Karen, now in her mid-seventies, still lives in New York state.
Do you want to know what it’s like to live day by day with a child who requires constant physical care? Read Karen. Do you want to expose your children to situations where people rise up courageously to face circumstances beyond their control? Have them read Karen. Is your family going through its own rough season? Be encouraged. Read Karen.